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Tips for Coping with POTS: Lifestyle Changes and Support

Living with POTS (Postural Orthostatic Tachycardia Syndrome) can present many challenges, but incorporating lifestyle changes and seeking support can greatly improve quality of life for those affected by this condition. If you or someone you know is dealing with POTS, there are several tips and strategies that can help in managing symptoms and navigating daily life more effectively.

First and foremost, it is essential to listen to your body and prioritize self-care. This may involve making adjustments to your daily routine, such as incorporating regular breaks, staying hydrated, and ensuring an adequate amount of rest. Establishing a consistent sleep schedule can also be beneficial in managing symptoms of POTS. Additionally, maintaining a balanced diet and avoiding triggers like caffeine and alcohol can help in managing symptoms like dizziness and fatigue. Staying active is another important aspect of managing POTS. While intense exercise may not be feasible for everyone with POTS, engaging in low-impact activities such as yoga, walking, or swimming can help in improving circulation and overall well-being. It is important to work closely with healthcare professionals to develop an exercise plan that is tailored to your individual needs and limitations. Seeking support from healthcare providers, family, and friends is crucial for those living with POTS. Building a strong support system can provide emotional support, practical assistance, and valuable resources for managing the condition. Joining online support groups or connecting with others who have POTS can also provide a sense of community and understanding. In addition to lifestyle changes and support from others, it is important to stay informed about the latest research and treatment options for POTS. Keeping up-to-date with developments in the field can empower individuals with POTS to make informed decisions about their health and well-being. Overall, coping with POTS requires a multifaceted approach that involves making lifestyle changes, seeking support, and staying informed. By taking proactive steps to manage symptoms and prioritize self-care, individuals with POTS can enhance their quality of life and well-being. Remember, you are not alone in this journey, and there are resources and support available to help you navigate life with POTS.

 
 
 

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What is P.O.T.S ?

  • P.O.T.S stands for Postural Orthostatic Tachycardia Syndrome

  • It is a illness characterized by abrupt increase in heart rate rapidly after standing up from sitting, or after prolonged standing​

  • This jump in heart rate causes drop in blood pressure leading to other symptoms such as lightheadedness, near fainting, and fatigue

  • It disproportionately ​affects females (80% are females), especially teens from 13-16 years of age

  • It is thought that a viral illness is supposed to cause this disorder

  • There has been a rise in P.O.T.S incidence, since COVID-19 pandemic

  • Dizziness, lightheadedness, blurry vision, headaches, near fainting, difficulty breathing, nausea, fatigue, long standing back pain, are some of the symptoms that P.O.T.S patients experience from day to day​

Why care  about P.O.T.S?

  • It is estimated that around 2-6 million Americans are affected by P.O.T.S

  • While some patients have mild symptoms, some patients can have debilitating symptoms

  • Severity of symptoms can lead to absence from school, work, and sports affecting productivity and quality of life

  • 1 in 4 P.O.T.S patients are disabled and unable to work

  • Living with P.O.T.S can be very difficult on a day to day basis. 

How to treat P.O.T.S

  • Hydration is a great way to improve circulating volume, since P.O.T.S symptoms are triggered by low blood pressure

  • Recommend drinking 2-3 liters of water per day

  • Liberal salt intake to 8000 milligrams per day

  • Calf strengthening exercises

  • Wearing compression stockings

  • Avoiding substances such as caffeine which can worsen symptoms

  • Occasionally Fludrocortisone use under the guidance of a physician

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